Intensive therapy paying off for young girl with rare condition
Amaria Emery, of Kaiapoi in North Canterbury, is one of just 10 children in New Zealand with CDKL5 – a neurological condition that means she is missing a protein needed for brain development.
Parents they spoke to encouraged them to get her into intensive therapy, and the family tries to visit the Timmermans Method Therapy Clinic in Adelaide once or twice a year, finances permitting. There, Amaria receives three-hour one-on-one therapy sessions a day for three weeks, and while exhausting for her, the results are paying off.
The Emerys said the main hope for Amaria was to get her walking, something they work on with her through her therapy exercises each day. They are optimistic of a medical answer for the condition in the future.
But their immediate goal is to conquer a half-marathon in Queenstown later this month – a challenge they have been trying to get over the line for some time. A Givealittle page has been set up for anyone wanting to support the runners, and in turn Amaria’s family which includes sisters Arabella, 8, and Alessandra, 7.
Poll: Do you think banning gang patches is reasonable?
With the government cracking down on gangs, it is now illegal for gang members to display their insignia in public places whether through clothing or their property.
This means arrests can be made if these patches are worn in places like restaurants, shops, on public transport or ferries, and on airplanes. Arrests were made recently at a funeral.
Do you think this ban is reasonable?
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76.3% Yes
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22.4% No
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1.3% Other - I'll share below
What's your favourite recipe for courgettes?
Kia ora neighbours. If you've got a family recipe for courgettes, we'd love to see it and maybe publish it in our magazine. Send your recipe to mailbox@nzgardener.co.nz, and if we use it in the mag, you will receive a free copy of our January 2025 issue.
TV 1 last night.
Did any body watch A Remarkable Place to Die last night?
Did I miss something at the end as it went straight to the next program after the adds.with no finish
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